EPISODE · Aug 29, 2021 · 43 MIN
Maggies Corner| Trigger warning real life flares
from The FND Podcast · host Maggie.chapman, Odettecreates
In this Episode of Maggies Corner it’s actually different from the usual episodes. Trigger warning it contains actual sound recordings of both Maggie and myself in our own FND Flares. We also discuss our experience during the recording aswell as our experience of how we handle our flares. Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creativePart of looking after yourself within a flare is self care this article I found interesting;https://thrivingwhiledisabled.com/self-care-with-fnd/fnd action has a whole section called you matter which deals With a lot of areas within fnd that can help with self carehttps://www.fndaction.org.uk/you-matter/apps to checkout to help meditation : insight or headspace. To listen to our song playlist started by our lovely Maggie on Spotify click on the link below https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAAFND Merchandise to support FND Australia Support services by Chucky from @friendswithfndhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQOther podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndhttps://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacksfollow on Instagram @ Meg.jacks_TicTok: @megjacksInstagram follow Emma’s journey :@emmas_fnd_funThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND
What this episode covers
In this Episode of Maggies Corner it’s actually different from the usual episodes. Trigger warning it contains actual sound recordings of both Maggie and myself in our own FND Flares. We also discuss our experience during the recording aswell as our experience of how we handle our flares. Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative
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Maggies Corner| Trigger warning real life flares
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