Maike, Philipp und Emma aus Berlin

from Handicapped Family · host Melanie Bialowons

In dieser Folge stellt Maike ihre Familie vor. Mittelpunkt der jungen Familie ist die kleine Emma. Emma ist vier Jahre alt und lebt mit dem sehr seltenen Gen-Defekt SCN2A. Was genau das für die kleine Familie bedeutet und wie sie ihr Leben dennoch "gewuppt" bekommen erfahrt ihr in dieser Folge. Maike findet ihr bei Instagram unter https://www.instagram.com/emma_scn2a/ Wenn ihr mehr über den Gen-Defekt der kleinen Emma erfahren möchtet schaut euch gerne auf der zugehörigen Seite um. Maike ist hier Gründungsmitglied so dass ihr auch hierüber sicher Kontakt zu ihr finden könnt. https://www.scn2a.de/

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This episode is 23 minutes long.

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This episode was published on June 30, 2023.

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