Make A Difference Minute: Finding a Way Forward for Ruthee

On this Make a Difference Minute, I have Holly Parrish as she shares about her four-year-old daughter, Ruthee, who lives with Kabuki syndrome and needs specialized care that has been difficult to access. For Holly, one of the biggest needs right now is finding people who have already walked a similar road and can help point her toward the next step. She has closely followed Jessica Davenport and the Kruzn for a Kure Foundation, watching how Jessica Davenport has advocated for Kruz and Paizlee, pursued specialized care, raised money for research, and kept pushing when the answers were far from home. Holly says she found herself taking notes and treating Jessica’s efforts almost like a roadmap for what she may eventually have to do for Ruthee. That’s why hearing from another parent who has successfully navigated Medicaid denials, waivers, exceptions, or other barriers for a medically complex child could be so valuable right now. If you believe you may be able to help Holly and Ruthee, you can email Holly at [email protected]. This Make a Difference Minute is brought to you by Green's Dependable Hardware, proudly supporting stories and the people who make our communities strong. Real stories. Real people. Real impact. News That Unites!™️