Make A Difference Minute: Love Like Livvy

On this Make a Difference Minute, I have Kayleen and Drake Borden as they share how the life of their daughter, Livvy Rue Borden, is inspiring a mission to help other families facing the rare genetic disease SMARD1. While no parent expects to walk the road they have traveled, Kayleen and Drake have chosen to turn their grief into purpose. Through their effort, Love Like Livvy, they hope to one day establish a nonprofit foundation that will support families affected by SMARD1 by helping with travel, lodging, and other expenses while they seek specialized medical care. Their vision also includes partnering with neuromuscular and genetic specialists to help fund research toward better treatments and, ultimately, a cure. They also hope to advocate for newborn screening so families can receive answers sooner and be better prepared than they were. Even in the midst of profound loss, Livvy’s legacy is becoming one of hope, compassion, and determination for families who may one day walk a similar path. To learn more about the effort to advance research for SMARD1, visit Smash SMARD and/or SmashSMARD.org. This MADM is brought to you by Bama Estate Planning by Attorney Harlan D. Mitchell, proudly supporting stories and the people who make our communities strong. Real stories. Real people. Real impact. News That Unites!™️