Malaine Robinson (Usher Syndrome)|#118 episode artwork

EPISODE · Feb 10, 2025 · 40 MIN

Malaine Robinson (Usher Syndrome)|#118

from ListenABLE · host SESSION in PROGRESS

What’s it like to live with Usher syndrome, a condition that causes both progressive vision loss and deafness?  "I really, really struggle with the fact that my hearing loss is almost a hidden disability?" In this episode, Malaine Robinson shares her experience of adapting to life with dual disabilities, from early diagnosis to becoming a guide dog handler and falling in love with her 'partner in crime' Dessi.  What You’ll Learn: The challenges of navigating daily life with Usher syndrome. How guide dogs provide independence and mobility support. The role of technology in accessibility and communication. Malaine’s career journey and the adjustments she’s made along the way. Her take on accessible dining and why it matters. Whether you’re interested in the responsibility of owning a guide dog, or just want to hear a firsthand account of living without sight and sound, this episode offers a practical look at the challenges and solutions that shape Melanie’s day-to-day life. Want to work with Mel? Check out the links below! LinkedIn: https://www.linkedin.com/in/melaine-robinson-42068449/ Speaker Reel: https://www.youtube.com/watch?v=csXzL9f4Dz4 Watch the Full Episode with Captions Here: https://youtu.be/Ohd6IdrZhaw Grab our first merch release at our website Session in Progress.https://fromyourpocket.com.au/work/listenable/merch Recorded, edited and produced by Angus' Podcast Company: www.sessioninprogress.com.auSee omnystudio.com/listener for privacy information.

What’s it like to live with Usher syndrome, a condition that causes both progressive vision loss and deafness?  "I really, really struggle with the fact that my hearing loss is almost a hidden disability?" In this episode, Malaine Robinson shares her experience of adapting to life with dual disabilities, from early diagnosis to becoming a guide dog handler and falling in love with her 'partner in crime' Dessi.  What You’ll Learn: The challenges of navigating daily life with Usher syndrome. How guide dogs provide independence and mobility support. The role of technology in accessibility and communication. Malaine’s career journey and the adjustments she’s made along the way. Her take on accessible dining and why it matters. Whether you’re interested in the responsibility of owning a guide dog, or just want to hear a firsthand account of living without sight and sound, this episode offers a practical look at the challenges and solutions that shape Melanie’s day-to-day life. Want to work with Mel? Check out the links below! LinkedIn: https://www.linkedin.com/in/melaine-robinson-42068449/ Speaker Reel: https://www.youtube.com/watch?v=csXzL9f4Dz4 Watch the Full Episode with Captions Here: https://youtu.be/Ohd6IdrZhaw Grab our first merch release at our website Session in Progress.https://fromyourpocket.com.au/work/listenable/merch Recorded, edited and produced by Angus' Podcast Company: www.sessioninprogress.com.auSee omnystudio.com/listener for privacy information.

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Malaine Robinson (Usher Syndrome)|#118

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What’s it like to live with Usher syndrome, a condition that causes both progressive vision loss and deafness?  "I really, really struggle with the fact that my hearing loss is almost a hidden disability?" In this episode, Malaine Robinson shares...

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