EPISODE · May 22, 2020 · 27 MIN
Managing the Day With a Child With a Rare Disease
from Raising Rare
“This is a marathon. If we run a marathon like a sprint, we will be burnt out in the first mile.” SanathWhen Sanath and Ramya learned of Raghav’s diagnosis, life became very busy. They found ways to organize and focus on their work to find a treatment and on their careers. They learned how to manage the stress.“Too many things came at the same time. Sanath and I could not have a conversation about anything. We would talk two lines and then my mental capacity would be full. I can’t hear anymore. I am not able to process this.” RamyaIn this episode, we discuss some of their biggest fears and a few dreams they have for Raghav.Music and Sound Design by Jacob TompkinsGraphics by Ramya Ramaswamy
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Frequently Asked Questions
How long is this episode of Raising Rare?
This episode is 27 minutes long.
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This episode was published on May 22, 2020.
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