Many parent caregivers are struggling with disability care. Here are their stories.

In Washington, many families that have children with disabilities are supposed to have help with care. Actually finding that help, though, can be incredibly difficult. The struggle some families have experienced and the lengths they're going to to try to make it better.   Thank you to the supporters of KUOW, you help make this show possible! If you want to help out, go to kuow.org/donate/soundsidenotes Soundside is a production of KUOW in Seattle, a proud member of the NPR Network.See omnystudio.com/listener for privacy information.