Maya Brown-Zimmerman

In this episode of Staying Connected, we talk to Maya Brown-Zimmerman, who was diagnosed with Marfan syndrome as a child. Because of her atypical features and medical events, her diagnosis was questioned several times and she was tested for VEDS and Loeys-Dietz before a genetic test revealed she does have an FBN1 mutation, associated with Marfan syndrome. In this episode, she shares her story with Marfan syndrome, advocacy, and her recent SCAD, or spontaneous coronary artery dissection. Find more information about Marfan syndrome, including support groups and medical webinars, at marfan.org If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit https://staying-connected.blubrry.net/contact/ Support You can support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons: Jon Holtom Kacey Keegan Adventuresinlove4Andie Ashton Tanner Ryan Rodarmer Disclaimer The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer.

Episode metadata supplied by the publisher feed · Published Jul 15, 2023

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Maya Brown-Zimmerman

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This episode is 42 minutes long.

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This episode was published on July 15, 2023.

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