Mental Health in the Shadows: Emotional Challenges on the Rare Disease Journey - EP 168

Are you feeling the emotional weight of the caregiving journey? You aren't alone. 🫂In today’s episode, Diane Carbo sits down with Wes Michael, founder of Rare Patient Voice, to talk about the "shadows" of the rare disease experience. We discuss the mental health burden on caregivers, the frustration of seeking a diagnosis, and why sharing your story can be a truly cathartic experience. 🗣️💡https://www.caregiverrelief.com/mental-health-in-the-shadows-emotional-challenges-on-the-rare-disease-journey-with-wes-michael-episode-168We also cover:The high rates of emotional distress in the rare disease community.The importance of breaking the stigma around mental health care.How to participate in healthcare research while ensuring your privacy is 100% protected.