Meredith Cowden Keeps it Real as She Shares Her Long Journey with Graft Versus Host Disease (GVHD)

Meredith Cowden was only 19 years-old when she was diagnosed with AML about 20 years ago. Meredith  has been dealing with GVHD in many manifestations for most of these two decades.  Polymyositis and steroid use are discussed as well as the incredible perseverance and determination this young lady carries with her each day. Meredith, a clinical counselor, is in the business of helping others thrive during the work day. And in her free time, she is always willing to share her story and her heart to help others. Her loving parents started the Meredith Cowden Foundation many years ago and is is an incredible organization dedicated to educating people and also raising funds for research to help those suffering. They host symposiums and secure the top experts in the nation to address these topics. The link to the foundation is located below. This wonderful episode is real, honest and chock full of tips and suggestions sure to help those dealing with Graft Versus Host Disease (GVHD) - including documentation, apps, being your own best advocate, and her "spoon" trick.The information in this podcast should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. The listed resources are not intended to be endorsements.Resources: Meredith Cowden Foundation: https://cowdenfoundation.orgPema Chodron’s website: https://pemachodronfoundation.orgNational Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKThank you to this season's sponsors:Incyte Corporation: https://www.incyte.com/Kadmon: https://kadmon.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment.  It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK.  Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.