Mostyn’s Story: Mother’s Day Special with Zoe Hummel

from Patient Empowerment Program: A Rare Disease Podcast

Motherhood is a journey filled with challenges, but every step is worth it for the love and joy it brings. Zoe Hummel joins the show in this special Mother’s Day episode to discuss her son Mostyn’s emotional story to diagnosis, and the unique challenges and triumphs of being a nano-rare mom. Order your Mother's Day card by May 6, 2024! All proceed support nano-rare patients. On This Episode We Discuss: How Zoe met her Husband, Mostyn’s father Zoe’s Violin origins and playing with Rod Stewart Mostyn’s journey to a diagnosis Zoe’s advice for parents observing abnormalities in their child's development Mostyn’s severe epilepsy A road trip to Boston Children’s Hospital in the middle of winter The ‘unlucky’ diagnosis of KCNB1 For-profit companies promising false hope

What this episode covers

Motherhood is a journey filled with challenges, but every step is worth it for the love and joy it brings. Zoe Hummel joins the show in this special Mother’s Day episode to discuss her son Mostyn’s emotional story to diagnosis, and the unique challenges and triumphs of being a nano-rare mom.Order your Mother's Day card by May 6, 2024! All proceed support nano-rare patients.On This Episode We Discuss:How Zoe met her Husband, Mostyn’s fatherZoe’s Violin origins and playing with Rod StewartMostyn’s journey to a diagnosisZoe’s advice for parents observing abnormalities in their child's developmentMostyn’s severe epilepsyA road trip to Boston Children’s Hospital in the middle of winterThe ‘unlucky’ diagnosis of KCNB1For-profit companies promising false hope

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Mostyn’s Story: Mother’s Day Special with Zoe Hummel

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This episode is 50 minutes long.

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This episode was published on May 1, 2024.

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