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MPS Education & Awareness

Episode 270 of the The On-Air Advocate podcast, hosted by Tammy Flynn, titled "MPS Education & Awareness" was published on May 12, 2021 and runs 17 minutes.

May 12, 2021 ·17m · The On-Air Advocate

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As we spotlight MPS awareness month, I am so excited to welcome, Daisy Vogt, Integrative Nutrition Health Coach & MPS Mom.
 
Mucopolysaccharidoses are genetic diseases affecting 1 in 25,000 children. MPS and related diseases affect virtually every organ and body system including joints, nerves and muscles. This is due to incompletely broken down glycosaminoglycan (GAG) that remains stored inside the cells in the body and begins to build up, causing progressive damage and, for many, significant pain.
Individuals with MPS may present with symptoms of pain not unlike those with other degenerative diseases, including arthritis. This pain may occur from nerve pain stemming from neurologic involvement and neuropathic signals arising in the brain. There may also be joint pain that causes inflammation, stiffness and swelling in the knees, hips, hands and spine.
 
Listen in as Daisy shares her family's journey with MPS & how you can help spread awareness on May 15th.
 
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