EPISODE · Nov 5, 2021 · 10 MIN
Multiple studies enrolling now, start with Ciitizen and keep going...
from SynGAP10 weekly 10 minute updates on SYNGAP1 · host Mike Graglia, CURE SYNGAP1
Episode 34 of #Syngap10 - November 5th, 2021 - 3rd Annual Synapse Roundtable will be Dec 3, 2021, sign up at https://syngap.fund/rt3 - We have 22 spots left in this cohort of Ciitizen, sign up in the next 10 days: https://Ciitizen.com/SYNGAP1 -Three more studies are enrolling now/soon: -Dr. Andrade - Watch the video and let us know if you have an adult who would like to participate. https://youtu.be/WyhRDePe0Jc - Dr. Frazier - Reach out to [email protected] to participate. Here is the webinar. https://www.syngapresearchfund.org/webinars/improving-the-assessment-of-syngap1-by-creating-online-measures-for-parents-and-patients - ORCA - Once we get the greenlight from FDA we will start recruiting. Here is a link with more info: https://www.syngapresearchfund.org/post/combinedbrain-duke-university-team-up-to-receive-a-prestigious-fda-grant - Great newsletter, make sure to read it: https://syngap.fund/Nov - Giving Tuesday Fundraiser: https://syngap.fund/gt21 - ICD-10 Code: https://syngap.fund/F78A1 ICD11 Effort: https://syngap.fund/ICD11 - What is SYNGAP1? https://www.syngapresearchfund.org/home/what-is-syngap1 - Sign up for this 10 minute #podcast #SYNGAP10 here https://syngap.fund/10 - Happy GC Awareness Day! #SynapseRT #F78A1 #ICD10 #ICD11 #Syngap #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics
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Multiple studies enrolling now, start with Ciitizen and keep going...
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