My Experience with Chronic Fatigue Syndrome

In this episode, Niraj speaks with Elia, an 18-year-old living with Chronic Fatigue Syndrome (CFS). Elia shares her story of fainting as a child, navigating years of worsening symptoms, and finally being diagnosed at 17. She talks about how CFS affects her energy, independence, and identity—and how hard it is when symptoms are invisible. Elia opens up about the emotional toll, the grief of missing out, and how even with good planning, flare-ups can still hit without warning. She explains what real support looks like, why routine helps, and how sometimes the best thing you can do is just be there and listen. This is a thoughtful, honest chat about living with CFS and learning to adapt without losing hope. To get connected with Niraj, find him on Instagram. To follow along with all of The Forgotten Generation Podcast series, you can also find the podcast on Instagram. Please leave a rating, share a comment, and subscribe! Follow Be the change. Media Network on Instagram: @bethechangemedianetwork. If you have any questions, please email Lily Mott at [email protected].