My Lichen Sclerosus Diagnosis

Lichen Sclerosus is often misdiagnosed many times before it is finally correctly diagnosed and treated. This can lead to frustration, disappointment, and worsening symptoms. Unfortunately, this is what happened to Clare Baumhauer. After forty years of suffering, she was told she had developed vulval cancer due to Lichen Sclerosus. My story had many of Clare's twists and turns but fortunately, was caught early. Share your story and help grow our community so we can help each other survive this awful disease. I look forward to hearing from you. Resources used in this episode: https://www.vice.com/en_us/article/7xn87b/lichen-sclerosus-vulva-cancer-symptoms https://acpinternist.org/archives/2011/06/vaginal.htm https://www.rightdiagnosis.com/l/lichen_sclerosis/misdiag.htmMentioned in this episode:Finally Get Clear Answers About LS, Menopause, and Your TreatmentIf you’ve ever found yourself listening to this podcast searching for answers… trying to figure out why your body feels different… why your treatment isn’t working… or whether this is menopause, lichen sclerosus, or something else entirely… You’re not alone. And more importantly— you’re not the problem. Most people with LS are left trying to piece together a care plan from short appointments, conflicting advice, and hours of searching like this. That’s exactly why we created the Wholistic Healing Summit. This free, live event (May 11–15, 2026) brings together 12+ leading specialists to help you finally connect the dots between your symptoms, your treatment, and your next steps. Inside the summit, you’ll get answers to questions like: Why does my treatment stop working? Is this LS progression… or hormonal change? What order should I actually be using my medications? How do I navigate intimacy, pain, and changing skin? And if you choose to upgrade, you’ll also get access to exclusive Q&A sessions, where you can hear real questions from people just like you… and get expert answers you’d normally wait months (and pay hundreds) for. This is where the guessing stops. 👉 Register here: https://lssupportnetwork.org/whs If you’re tired of second-guessing your care… this is your next step. P.S. If you’ve ever wished you had more time with a specialist or left an appointment with unanswered questions, the All-Access Pass gives you direct access to expert Q&As you can revisit anytime.