EPISODE · Sep 18, 2025 · 10 MIN
National Lupus Survey – your voice is needed!
from Arthritis At Home (+ On the Go) · host Arthritis Consumer Experts
Lupus is a complex autoimmune disease that can affect the skin, joints, kidneys, brain, and other organs. It often takes years to diagnose and can dramatically affect quality of life. In this special episode of Arthritis at Home, Kelly Lendvoy from Arthritis Consumer Experts speaks with Leanne Mielczarek, CEO of Lupus Canada, about the official launch of the National Lupus Survey and the importance of collecting and amplifying the voices of people living with lupus across Canada. Kelly and Leanne discuss: Why this is the first patient-led national survey of its kind focused entirely on lived lupus experience What we hope to learn from people living with lupus across Canada How the results will shape advocacy and education Take the Survey now If you live with lupus, we want to hear from you! Your participation will help change how lupus is understood, treated, and supported in Canada. Click here to take the Survey!
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Lupus is a complex autoimmune disease that can affect the skin, joints, kidneys, brain, and other organs. It often takes years to diagnose and can dramatically affect quality of life. In this special episode of Arthritis at Home, Kelly Lendvoy from Arthritis Consumer Experts speaks with Leanne Mielczarek, CEO of Lupus Canada, about the official launch of the National Lupus Survey and the importance of collecting and amplifying the voices of people living with lupus across Canada. Kelly ...
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National Lupus Survey – your voice is needed!
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