Navigating the health system with Ehlers-Danlos syndrome

We sit down with Denise Reich, a patient advocate, to explore her journey of navigating the healthcare system with Ehlers-Danlos syndrome (EDS). Denise shares her experiences from the initial mention of EDS during an ophthalmology appointment to finally receiving a formal diagnosis. We delve into the challenges she faced advocating for herself amidst dismissive attitudes from healthcare professionals and how the diagnosis of EDS has impacted her medical care. Denise sheds light on common misconceptions surrounding EDS, the negative perceptions within the medical community, and the steps needed to address them. Through her story, we uncover the importance of early recognition and validation of symptoms in patients, along with empowering messages for those struggling to have their concerns taken seriously. Denise Reich is a patient advocate. She discusses the KevinMD article, "Ehlers-Danlos syndrome: Overcoming doctor bias for a life-changing diagnosis." Our presenting sponsor is Nuance, a Microsoft company. Together, Microsoft and Nuance are leveraging their rich digital technology and advanced AI capabilities to tackle some of health care's biggest challenges. AI-driven technology promises to revolutionize patient and provider experiences with clinical documentation that writes itself. The Nuance Dragon Ambient eXperience, or DAX for short, is a voice-enabled solution that automatically captures patient encounters securely and accurately at the point of care. DAX Copilot combines proven conversational and ambient AI with the most advanced generative AI in a mobile application that integrates directly with your existing workflows. Physicians who use DAX have reported a 50 percent decrease in documentation time and a 70 percent reduction in feelings of burnout, and 85 percent of patients say their physician is more personable and conversational. Discover AI-powered clinical documentation that writes itself. Visit https://nuance.com/daxinaction to see a 12-minute DAX Copilot demo. VISIT SPONSOR → https://nuance.com/daxinaction SUBSCRIBE TO THE PODCAST → https://www.kevinmd.com/podcast RECOMMENDED BY KEVINMD → https://www.kevinmd.com/recommended GET CME FOR THIS EPISODE → https://earnc.me/uSZDYW Powered by CMEfy.