EPISODE · Apr 2, 2020 · 20 MIN
Not just carriers ft. Taylor Kane from Remember the Girls
from Wait, How Do You Spell That? A Rare Disease Podcast · host waithowdoyouspellthatraredisease
Rebekah and Ilana talk with Taylor Kane, who founded Remember the Girls, a nonprofit supporting carriers of X-linked diseases when she was 17. Taylor speaks about her experience with rare advocacy after losing her father to Adrenoleukodystrophy, misconceptions surrounding the word "carriers," and the projects Remember the Girls is working on now (Reproductive toolkits! Provider recommendations!) You can learn more about her work at https://www.rememberthegirls.org/, @rememberthegirls. You can also find Taylor's book, Rare Like Us, here: https://www.amazon.com/Rare-Like-Us-Finding-Plagued-ebook/dp/B07VYL7B49
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Not just carriers ft. Taylor Kane from Remember the Girls
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