Not Just Surviving, But Thriving With Pheo vs. Fabulous

from Wait, How Do You Spell That? A Rare Disease Podcast · host Patient Worthy

In this episode, we speak with Miranda Edwards, the voice behind Pheo vs. Fabulous about her journey with pheochromocytoma. That's an ultra-rare endocrine tumor that produces adrenaline, characterized by symptoms such as rapid heartbeat and dangerously high blood pressure, among others. Topics discussed: self-advocacy, the importance of awareness, living with a terminal diagnosis and more. Learn more about Miranda and her journey by visiting her website, PheoVsFabulous.com. You can also find out more about pheochromocytoma by visiting the Pheopara Alliance at PheoPara.org.

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This episode is 51 minutes long.

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This episode was published on November 12, 2021.

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