Nthabeleng Paulette Ramoeli, Patient advocate

Ramoeli was born in Lesotho, a country encircled by South Africa, and lives with Ehlers-Danlos syndromes and many other comorbid conditions. This young woman relentlessly fights for improved access to health care for rare disease patients in her home country and shares the story of her path to the diagnosis of EDS diagnosis in the context of a place where healthcare resources cannot be taken for granted. She established an NGO to help all rare disease patients in Lesotho.