EPISODE · Jun 29, 2023 · 1H 8M
Nutrition Equity Episode 2 PKU with Jill
from Rare Connection · host Joanna
Send us Fan MailChapter Markers0:00:00 Intro0:00:37 What is PKU?0"01:48 Birth Screening0:02:55 PKU is Not Contagious0:03:37 PKU Testing at Home0:05:57 How Having a Rare Condition Affects Jill0:10:18 Are Medical Foods & Formula Covered in Utah?0:10::56 Vitamins Considered Medical Food by the FDA0:15:37 Pregnancy & PKU0:17:27 Eating Out on a PKU Diet0:18:13 Protein Tolerance0:19:42 Calories Need to Be High0:20:32 Pregnancy, Diet, & PKU0:22:33 Palynziq & Pregnancy0:25:10 Nursing with PKU0:27:26 Healthcare by Location0:28:40 Cheating on Diet0:29:10 Sibling with PKU0:30:36 Being Around High-Protein Foods0:36:40 Medical Foods and Texture0:39:50 PKU Blood Level Range0:40:09 Missing an Injection0:41:57 Tracking Diet0:47:53 What 8 Grams of Protein Per Day Looks Like0:48:24 At Least 60 Grams of Protein Per Day0:49:42 Sleep & PKU0:50:42 Going Off Diet as a Child0:52:26 Going Back on the PKU Diet0:52:55 Altering Recipes0:53:58 Diet by Location0:57:22 Peer Pressure1:01:07 Why Many Cheat1:03:01 Turning Point1:05:44 Medical Gaslighting1:07:04 High Cost of Medical Foods1:08:50 Why Doctors Need More Rare Disease Education1:10:39 Amino Acid PHE Isn’t Just in Food1:17:33 Contacting Legislators1:17:52 ConclusionSupport the show
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Send us Fan Mail Chapter Markers 0:00:00 Intro 0:00:37 What is PKU? 0"01:48 Birth Screening 0:02:55 PKU is Not Contagious 0:03:37 PKU Testing at Home 0:05:57 How Having a Rare Condition Affects Jill 0:10:18 Are Medical Foods & Formula Covered in Utah? 0:10::56 Vitamins Considered Medical Food by the FDA 0:15:37 Pregnancy & PKU 0:17:27 Eating Out on a PKU Diet 0:18:13 Protein Tolerance 0:19:42 Calories Need to Be High 0:20:32 Pregnancy, Diet, & PKU 0:22:33 Palynziq & Pregnancy...
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Nutrition Equity Episode 2 PKU with Jill
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