O futuro das doenças raras: coordenação, inovação e acess...

What this episode covers

As doenças raras atravessam um momento decisivo no Brasil. De um lado, emergem novas terapias, tecnologias diagnósticas e modelos de cuidado capazes de encurtar jornadas e transformar prognósticos. De outro, persistem entraves estruturais que impedem que esses avanços cheguem às pessoas no tempo necessário. Entre regulação, capacidade de resposta do SUS, modelos de avaliação tecnológica e lacunas de coordenação, o futuro ainda depende de mudanças profundas.No novo episódio do podcast de Biotech and Health, com patrocínio da PTC Therapeutics Brasil, a repórter Carolina Abelin conversa com Antoine Daher, fundador e presidente da Casa Hunter, sobre os caminhos necessários para aproximar inovação, política pública e vida real do paciente.A conversa reforça que acesso, inovação e equidade são dimensões inseparáveis, e que transformar o futuro das doenças raras exige ação coordenada, diálogo entre governo, especialistas, indústria, Congresso Nacional e sociedade civil organizada.

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Frequently Asked Questions

How long is this episode of MIT Technology Review Brasil?

This episode is 34 minutes long.

When was this MIT Technology Review Brasil episode published?

This episode was published on November 28, 2025.

What is this episode about?

As doenças raras atravessam um momento decisivo no Brasil. De um lado, emergem novas terapias, tecnologias diagnósticas e modelos de cuidado capazes de encurtar jornadas e transformar prognósticos. De outro, persistem entraves estruturais que...

Can I download this MIT Technology Review Brasil episode?

Yes, you can download this episode by clicking the download button on the episode player, or subscribe to the podcast in your preferred podcast app for automatic downloads.