Orphan Disease Research: Overcoming Years Of Industrywide Neglect

from In Good Health · host Elizabeth Westfield, Greg Johnson, Maayan Voss de Bettancourt | AURN

Doctors diagnosed Patrick Girondi’s son with thalassemia in 1992, declaring he’d die by age 14. Like most other rare conditions, treatments for thalassemia were slim to none. Dr. Stanley Nelson explains how orphan disease research has progressed in the last few decades and why a cure isn’t always the goal. Learn more at: https://radiohealthjournal.org/orphan-disease-research/ Facebook: ingoodhealthpodX: @ ingoodhealthpodIG: @ingoodhealthpodYouTube: @ingoodhealthpodSpotify Apple Podcast In Good Health PodcastSubscribed to the newsletterFull ArchiveContact UsBecome an Affiliate Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

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This episode was published on July 3, 2022.

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