EPISODE · Nov 12, 2021 · 9 MIN
Our kids will live long lives and do beautiful things, let’s make sure we help them as much as possible.
from SynGAP10 weekly 10 minute updates on SYNGAP1 · host Mike Graglia, CURE SYNGAP1
Episode 35 of #Syngap10 - November 12th, 2021 HOLIDAY GIFTS - GET SRF #MERCH 5 days left to order Hoodies, T-shirts, other gear: - https://syngap.fund/LHC or https://syngap.fund/BKC - Get your holiday cards at Minted.com and use code FUNDRAISESYNGAP FOUR STUDIES are enrolling now/soon: - Dr. Andrade - Watch the video and let us know if you have an adult who would like to participate. https://youtu.be/WyhRDePe0Jc - Dr. Frazier - Reach out to [email protected] to participate. Here is the webinar. https://www.syngapresearchfund.org/webinars/improving-the-assessment-of-syngap1-by-creating-online-measures-for-parents-and-patients - ORCA - Once we get the greenlight from FDA we will start recruiting. Here is a link with more info: https://www.syngapresearchfund.org/post/combinedbrain-duke-university-team-up-to-receive-a-prestigious-fda-grant - We have less than 20 spots left in this cohort of Ciitizen, sign up in the next 10 days: https://Ciitizen.com/SYNGAP1 CRYPTO - Jack Shi interview on https://twitter.com/cureSYNGAP1/status/1459165110862168066?s=20 https://www.linkedin.com/feed/update/urn:li:activity:6864944054384279552 https://www.facebook.com/cureSYNGAP1/posts/910882546460875 - Donate Crypto to SRF https://syngap.fund/block HELP US RAISE FUNDS FOR SYNGAP - Facebook Fundraisers: http://syngap.fund/FBFun - Giving Tuesday Fundraiser: https://syngap.fund/gt21 - What is SYNGAP1? https://www.syngapresearchfund.org/home/what-is-syngap1 - Sign up for this 10 minute #podcast #SYNGAP10 here https://syngap.fund/10 #NFTs #crypto #unlockdefi #Bonfire #minted #Syngap #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics
Embed this episode
NOW PLAYING
Our kids will live long lives and do beautiful things, let’s make sure we help them as much as possible.
No transcript for this episode yet
Similar Episodes
No similar episodes found.