Parent-Led Science: Ana Rita Moreira’s Fight for Rare Disease Research episode artwork

EPISODE · Jun 25, 2025 · 11 MIN

Parent-Led Science: Ana Rita Moreira’s Fight for Rare Disease Research

from Mission Matters Business Podcast with Adam Torres · host Adam Torres

In this Mission Matters Milken Conference Series episode, ⁠Adam Torres⁠ interviews ⁠Ana Rita Moreira⁠, Executive Director of v-ATPase Alliance. Ana Rita shares how a rare diagnosis for her son led her to found a nonprofit that collects critical data to drive research for ultra-rare genetic conditions. Through grassroots collaboration and strategic advocacy, her organization is filling the scientific gap where few others will. Follow Adam on Instagram at ⁠https://www.instagram.com/askadamtorres/⁠ for up to date information on book releases and tour schedule. Apply to be a guest on our podcast: ⁠https://missionmatters.lpages.co/podcastguest/⁠ Visit our website: ⁠https://missionmatters.com/⁠ More FREE content from Mission Matters here: ⁠https://linktr.ee/missionmattersmedia⁠ Learn more about your ad choices. Visit podcastchoices.com/adchoices

Episode metadata supplied by the publisher feed · Published Jun 25, 2025

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Parent-Led Science: Ana Rita Moreira’s Fight for Rare Disease Research

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