Partnering with Your Care Team: Advocacy in PH – Part 2

Hosts: Jenna Olitsky, PAH and HHT patient, PHA’s Patient and Caregiver Education Committee member; Jolie Lizana, PAH patient and advocate; Meghan M. Cirulis, MD, MS, medical director, Intermountain Health Pulmonary Hypertension Center, assistant professor, pulmonary and critical care medicine, Intermountain Medical Center, adjunct assistant professor, University of Utah Pulmonary and Critical Care.   In this episode, hosts Lizana, Olitsky and Cirulis continue the conversation on advocacy, focusing on self-advocacy beyond the doctor’s office. They share how to communicate your needs with family, friends and others, set healthy boundaries and find confidence in representing yourself and your condition. The discussion offers real-life strategies and encouragement for living and advocating for yourself every day.     Visit PHA's Traveling with PH page for travel tips.  Read more about the Air Carrier Access Act to learn about your rights as a taveler.