Patient Clinic Survey Update with HD-PACE episode artwork

EPISODE · Jul 23, 2026 · 17 MIN

Patient Clinic Survey Update with HD-PACE

from Help 4 HD Live! · host Help 4 HD Live!

How are Huntington's disease clinics doing when it comes to the patient experience?On this episode of Help 4 HD Live, I'm joined by Sarina Smith of HD-PACE to share an update on our Clinical Patient Experience Survey—and we need your help! We're incredibly close to reaching 100 responses from people across the U.S. HD community. Every response helps us better understand what's working, where improvements are needed, and how we can use real patient experiences to advocate for better care.If you've been seen at any HD clinic in the United States or you are a support person who takes a loved one to an HD clinic, your voice matters.🎧Please visit hdpace.org for more information! You can also access the survey here.

Episode metadata supplied by the publisher feed · Published Jul 23, 2026

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Patient Clinic Survey Update with HD-PACE

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