Patient Voices: Reflections from Rheum Champions episode artwork

EPISODE · Nov 6, 2025 · 34 MIN

Patient Voices: Reflections from Rheum Champions

from Arthritis Life · host Cheryl Crow

They discuss how they became Rheum Champions, their personal journeys with conditions like rheumatoid arthritis, lupus, PCOS, and more, and the importance of community and support. The episode also highlights significant takeaways from the meeting, including research updates, the passion of the researchers, and the heartwarming sense of community.  This podcast serves as a powerful reminder of how important it is to integrate the patient voice into rheumatology research.   *This episode was originally recorded for the My Spoonie Sisters podcast. Episode at a glance:00:00 Welcome to the Rheum Champions Tell All01:59 Introducing the Rheum Champions03:55 Sharing Our Stories: The Journey to Advocacy07:13 The Impact of Community and Support10:55 Becoming a Rheum Champion16:09 Highlights from the 2025 Investigators Meeting24:52 Final Thoughts and How to Get InvolvedMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode metadata supplied by the publisher feed · Published Nov 6, 2025

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In this special episode of our podcast, we bring together a group of inspiring advocates known as Rheum Champions, each living with rheumatic diseases, to share their experiences and insights. These advocates participated in the 2025 Rheumatology Investigators Meeting, organized by the Rheumatology Research Foundation.

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Patient Voices: Reflections from Rheum Champions

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