Patron Exclusive: Friedreich's Ataxia and Skyclars Medication

This Tortoise Shack episode is a heartfelt and open discussion on Friedreich's Ataxia, its impact on young people, and the urgent need for accessible treatments. Journalist Niamh Ní Hoireabhaid and Legal Student, Emily Felix share their personal journeys, advocacy efforts, frustrations, struggles and hopes for the future.The conversation ends with a focus on the importance of societal support, the need for government action and the hope of medical advancements.