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EPISODE · Sep 9, 2023 · 36 MIN

Peter Donato

from Staying Connected

Peter Donato, who was diagnosed with Loeys-Dietz Syndrome, or LDS, in fifth grade, shares his experience growing up with LDS, being involved in the community and the teen program at The Marfan Foundation, and its division, the Loeys-Dietz Syndrome Foundation, and adapting his love of sports to his life with LDS while maintaining his health. Find more information about LDS including support groups and medical webinars, at https://www.loeysdietz.org/ If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit https://calendly.com/d/z7h-2cc-g33 Links mentioned in the episode: The Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation programming announcement: https://marfan.org/2023/08/21/announcing-2023-2024-foundation-programs/ Join a Walk for Victory: https://marfan.org/walk/ Positive Exposure https://positiveexposure.org/ Peter's Twitter handle: @petahchip19 Support You can support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons: Jon Holtom Kacey Keegan Adventuresinlove4Andie Ashton Tanner Ryan Rodarmer Benjamin Weisman Disclaimer The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer.

Episode metadata supplied by the publisher feed · Published Sep 9, 2023

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How long is this episode of Staying Connected?

This episode is 36 minutes long.

When was this Staying Connected episode published?

This episode was published on September 9, 2023.

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