Primary Ovarian Insufficiency & Purple Sweet Potatoes with Dr. Synneva Hagen Lillevik

In this episode of The Galactosemia Podcast, we’re joined by Dr. Synneva Hagen Lillevik, a registered dietitian and researcher, to explore her groundbreaking work on the potential benefits of purple sweet potatoes in treating Classic Galactosemia. Dr. Hagen Lillevik shares insights from her recent studies, offering hope and new directions for dietary management of this rare condition.thegalactosemiapodcast.com – support the show; ad-free and early access episodesLinks & Resources Mentioned:Purple Sweet Potato Study - https://www.mdpi.com/1422-0067/23/15/8654Guest Bio – Dr. Synneva Hagen LillevikDr. Synneva Hagen Lillevik is a registered dietitian and a postdoctoral research fellow with a robust background in nutrition and metabolic disorders. She completed her PhD at the University of Utah, where her research significantly advanced the understanding of primary ovarian insufficiency in Classic Galactosemia. Dr. Hagen Lillevik is particularly noted for her pioneering work on the use of purple sweet potatoes to mitigate oxidative stress associated with metabolic disorders. Currently, she continues her research at the University of Colorado Anschutz Medical Campus, focusing on nutrition’s role in preventing and managing gestational diabetes. Her work exemplifies a deep commitment to integrating clinical practice with research to improve patient outcomes in rare metabolic diseases.Episode Chapters:0:00 – Introduction to the Episode and Overview of Dr. Synneva Hagen Lillevik’s Work2:00 – Dr. Synneva Hagen Lillevik: A Journey Through Nutrition and Metabolic Research4:30 – Exploring the Potential of Purple Sweet Potatoes in Classic Galactosemia Treatment7:00 – Investigating Primary Ovarian Insufficiency in Classic Galactosemia Patients11:00 – The Broader Impacts of Dr. Hagen Lillevik’s Research on Patient Care15:00 – Future Research Directions and the Promise of Dietary Interventions20:00 – Nutritional Strategies and Dietary Management of Galactosemia25:00 – Listener Q&A: Practical Advice on Diet and Daily Management of Galactosemia30:00 – The Critical Role of Antioxidants in Managing Symptoms of Galactosemia38:00 – Behind the Scenes: The Motivations and Aspirations of a Galactosemia Researcher42:00 – Building a Supportive Community for Rare Diseases Through Research and Advocacy45:00 – Conclusion: Key Takeaways and Closing Thoughts on Galactosemia Research