Primary Sclerosing Cholangitis,& Trigeminal Neuralgia

Send us Fan MailIn this episode I talk with Christina, Who is the host of Speaking in Spoons and a patient with Primary Sclerosing Cholangitis (PSC), Trigeminal Neuralgia and Hemiplegic Migraines.  The aim of this podcast is to connect those with similar conditions, educate medical professionals, and hopefully help find treatments and clinical trials.Chapter Markers0:00:00 Intro0:02:10 Zebra analagy0:02:19 Why I switched from Nutrition Equity to Rare Connection0:04:30 How Primary Sclerosing Congelitis diagnosis0:13:30 Clinical trial for Primary Sclerosing Congelitis0:14:46 Balancing uncertainty of multiple rare conditions with maintaining hope for future treatments0:19:04 Making sure PSC recieves attention0:23:33 Trigeminal Neuralgia Diagnosis0:29:39 Trogemonal Neuralgia triggers0:30:39 Navigating life with intense pain0:33:26 Treatments for Trigminal Neuralgia0:35:00 Educating others about Trigeminal Neuralgia0:39:51 What a hemiplegic Migraine feels like0:51:04 Hw to tell the difference between a regular migraine and a hemiplegic migraine0:53:44 How Hemiplegic Migraines effect Christins=a's ability to participate in every day activities0:58:31 Advice for Hemiplegic Migraine patients1:01:47 ConclusionSupport the show