Q&A - 2024 Nano-rare Patient Colloquium Recap episode artwork

EPISODE · Dec 18, 2024 · 24 MIN

Q&A - 2024 Nano-rare Patient Colloquium Recap

from Patient Empowerment Program: A Rare Disease Podcast

Join Stan Crooke, n-Lorem founder, CEO, and host of the Patient Empowerment Program Podcast, alongside Amy Williford, Sr. Director of Communications and Donor Relations, for a special episode. In this post-colloquium Q&A, Stan recaps the 2024 Nano-rare Patient Colloquium and the progress n-Lorem has made as the organization nears its 5-year anniversary, shares his candid reflections on the event, and dives into additional thoughts and questions that weren’t covered. Do you have additional questions? Email [email protected].   Question Bank: 2:15 How do you think the event went this year? 6:05 Were observations of benefit expected in patients so quickly?  9:47 What do you expect the number of patients treated to be next year? 10:57 Do you have a message to supporters? 12:30 Were there any disappointments from the colloquium? 13:21 What are the most important things that n-Lorem has learned this year?  16:13 Do you think n-Lorem’s processes will be outlined every year at the event? 18:05 How is AI incorporated at n-Lorem? 19:10 Does your recently announced deal with GondolaBio reflect the sustainability strategy discussed at the event? 20:53 n-Lorem is celebrating 5 years in 2025. Did you expect the foundation to be where it is today? 21:28 Does n-Lorem plan to expand into Europe and elsewhere?   Make hope possible with a donation.

Episode metadata supplied by the publisher feed · Published Dec 18, 2024

Embed this episode

Ready to play

Q&A - 2024 Nano-rare Patient Colloquium Recap

0:00 24:22

No transcript for this episode yet

We transcribe on demand. Request one and we'll notify you when it's ready — usually under 10 minutes.

No similar episodes found.

No similar podcasts found.

Frequently Asked Questions

How long is this episode of Patient Empowerment Program: A Rare Disease Podcast?

This episode is 24 minutes long.

When was this Patient Empowerment Program: A Rare Disease Podcast episode published?

This episode was published on December 18, 2024.

Can I download this Patient Empowerment Program: A Rare Disease Podcast episode?

Yes. Use the download control on the episode player to save the publisher-provided media file.
URL copied to clipboard!