QR Special: The cruelty of Long Covid

How would you feel about a medical examination that was designed to make you faint? What about having to instal soundproof doors and blinds, because noise and light can bring on seizures? Welcome to the world of the Long Covid patient – and there are millions of them. Six years since the first Covid lockdown, humans have become relatively blasé about the disease. But it has cast a crippling shadow over a great many lives. Long Covid doesn't just leave its victims physically exhausted: the impacts are mental, emotional, economic, social and brutal. Worse still, Long Covid is not well understood and, as a result, treatments are sadly lacking. And it can come with a stigma – like other debilitating illnesses, patients often don't get taken seriously. Kenny Campbell is joined by Claire Higham, who has Long Covid and campaigns for a better understanding of this cruel condition, to find out more about how it wrecks lives, what's being done to combat it and why it isn't making bigger headlines. It's both fascinating and disturbing but, for patients and their loved ones, it can be an appalling brake on their lives – one that many never recover from. Also, a small correction to a figure raised in the show – Germany is dedicating €50m per year for ten years (half a billion over a decade) towards research into MECFS and other infection-associated chronic conditions. ***SPONSOR US AT ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠KO-FI.COM/QUIETRIOTPOD⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠*** ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠• #LongCovidAwareness ... find out more about Long Covid at... - NHS - MEpedia - Long Covid Advocacy - Long Covid Physio - Open Medicine Foundation - Bateman Horne Centre - Long Covid Justice - ME Scandal Explainer - The Tangled Story - Severe ME - First Do No Harm - Ed Yong - Madeline Miller - The Sick Times • We have put together a ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠BLUESKY STARTER PACK⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, with all our regular contributors and many interesting politicos besides. • Email us at ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ • Or visit our website ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.quietriotpod.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ • Cover composite images by CDC on Unsplash and xadartstudio on Freepik Brought to you by Naomi Smith, Alex Andreou and Kenny Campbell. Quiet Riot is a Cooler Heads production ***SPONSOR US AT ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠KO-FI.COM/QUIETRIOTPOD⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠*** Learn more about your ad choices. Visit podcastchoices.com/adchoices