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Rádio Câmara NO AR - Distrofia Muscular de Duchenne: "Arthur quer viver!" episode artwork

EPISODE · Jun 26, 2026 · 17 MIN

Rádio Câmara NO AR - Distrofia Muscular de Duchenne: "Arthur quer viver!"

from Rádio Câmara Sorocaba Podcasts · host Secom - Câmara Municipal de Sorocaba

A Câmara de Sorocaba realizou audiência pública para debater a Distrofia Muscular de Duchenne e o acesso ao medicamento de alto custo Elevydis, fundamental para o tratamento dessa doença rara, degenerativa e progressiva. Natália Jordão, mãe do menino Arthur Jordão, diagnosticado com Duchenne em 2024, participou do programa com o Vereador Ítalo Moreira, proponente da Audiência Pública, e relatou a luta da família para a liberação da medicação pela Anvisa. Acesse o instagram @arthursorocaba para conhecer mais sobre a história do menino Arthur e colaborar com a campanha.Apresentação: Priscilla RadighieriTrabalhos técnicos: Leandro Alberto"365 anos fazendo história! Câmara Sorocaba, o progresso da cidade passa por aqui!"

Episode metadata supplied by the publisher feed · Published Jun 26, 2026

What this episode covers

A Câmara de Sorocaba realizou audiência pública para debater a Distrofia Muscular de Duchenne e o acesso ao medicamento de alto custo Elevydis, fundamental para o tratamento dessa doença rara, degenerativa e progressiva. Natália Jordão, mãe do menino Arthur Jordão, diagnosticado com Duchenne em 2024, participou do programa com o Vereador Ítalo Moreira, proponente da Audiência Pública, e relatou a luta da família para a liberação da medicação pela Anvisa. Acesse o instagram @arthursorocaba para conhecer mais sobre a história do menino Arthur e colaborar com a campanha.Apresentação: Priscilla RadighieriTrabalhos técnicos: Leandro Alberto"365 anos fazendo história! Câmara Sorocaba, o progresso da cidade passa por aqui!"

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How long is this episode of Rádio Câmara Sorocaba Podcasts?

This episode is 17 minutes long.

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This episode was published on June 26, 2026.

What is this episode about?

A Câmara de Sorocaba realizou audiência pública para debater a Distrofia Muscular de Duchenne e o acesso ao medicamento de alto custo Elevydis, fundamental para o tratamento dessa doença rara, degenerativa e progressiva. Natália Jordão, mãe do...

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