Raising a Child With Prader-Willi Syndrome | Jessica Patay

In Part Two of my conversation with Jessica Patay, founder and CEO of We Are Brave Together, we explore the realities of raising a child with Prader-Willi syndrome and the lifelong responsibilities that can come with caregiving.Jessica shares the story of her son Ryan’s diagnosis, the challenges surrounding food security, anxiety, independence, adult programming, and the constant planning required to keep him safe. She also speaks candidly about the grief many caregiving mothers carry, the fear of what will happen when they are gone, and the emotional weight that often remains hidden from the outside world.This episode also highlights the importance of community, storytelling, and support for caregiving mothers. Jessica introduces her newest book, Suddenly Brave Together, and explains how We Are Brave Together is creating connection circles, respite retreats, scholarships, and resources designed to protect the mental health of women caring for children with disabilities.This is an honest, compassionate conversation about love, uncertainty, belonging, and the village every caregiving family deserves.RESOURCES & SUPPORT: Your Wish Is Your Command (Free)Your Wish Is Your Command (Physical Copy)Shared Humanity SubstackShared Humanity BookThe Gentle Year FB GroupTurning The Tide TutoringActing With PippiI'm a fan and would love to support the work you're doing.Private Success ClubMetafriction by Luke Roberts#affiliateEPISODE-SPECIFIC RESOURCES:We Are Brave TogetherBecoming Brave Together (Book)Suddenly Brave Together (Book)Send us Fan MailTurning The Tide TutoringSponsored by Turning The Tide Tutoring — empowering students and parents to grow and thrive.Your Wish Is Your CommandA resource for deepening awareness around thought patterns, perception, and intentional response.Acting With PippiActing with Pippi is acting program that helps youths build courage & presence through performance.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the show