Raising Awareness for Hidradenitis Suppurativa with Journalism and Patient Advocacy feat. Jasmine Espy

Jasmine Espy, founder and CEO of the Association of Hidradenitis Suppurativa and Inflammatory Diseases (AHSID), joins Janelle Ball to discuss being a patient advocate and filmmaker. The conversation explores Jasmine’s love of journalism and how hidradenitis suppurativa (HS) impacted her mental health and well-being. It also highlights the importance of making individuals with inflammatory diseases feel seen, heard, and cared for. WARNING: This episode includes discussions about mental health, suicide, and self-harm. The intention is not to promote such actions or offend but to provide information. Proceed with listening if you are comfortable with potentially sensitive topics. Jasmine Espy’s journey with hidradenitis suppurativa began at thirteen when she faced misdiagnoses and a lack of understanding from the medical community. After being told she would die from her condition and bringing multiple changes of clothing to school, Jasmine often felt isolated and misunderstood. When her mother saw an ad for a clinical trial, Jasmine hesitantly signed up and, after a few discussions, was given the HS diagnosis. DISCLAIMER: This podcast is for informational purposes only and should not be considered medical or health advice. This podcast does not substitute medical treatment. Always consult a doctor or dermatologist regarding medical advice, diagnoses, or treatment.Years later, Jasmine began to share her story through journalism. Jasmine is a filmmaker, writer, and public speaker. Jasmine has produced and starred in documentaries that highlight the experiences of individuals with HS and a series that gives a global perspective on HS. Through AHSID, Jasmine has initiated various advocacy and awareness efforts, including educational programs, community-building activities, and an annual summit. This summit is a platform for patients, caregivers, and healthcare professionals to come together, share experiences, and learn about the latest research and treatment options. Jasmine also emphasizes the importance of addressing the comorbidities associated with HS, ensuring that individuals receive comprehensive care that acknowledges their full range of experiences. Connect with Jasmine Espy on LinkedIn, visit the AHSID website, and watch her documentaries on YouTube. This episode is produced by Skip The Boring Stuff, a podcast strategy company for business owners.