Rare Connection Episode 6: Calciphylaxis and Multiple Endocrine Neoplasia Type 1

Send us Fan MailDubbed the man who died twice and Hod brought back to life, Kevin Hills Story appears in 45 national and international Newspapers and Magazines.  Listen along as I talk with Kevin about his medical conditions Calcifylaxis and Multiple Endocrine Neoplasia Type 1(MEN1).  You can see the full video on YouTube on my channel, Rare_Chef.Chapter Markers 0:00:00 Intro0:01:50 stroke diagnosis0:03:42 Multple Endocrine Nepplasia 1 diagnosis0:08:06 Calciphylaxis Diagnosis0:13:39 Weight loss0:15:41 Blood loss Levels0:17:46 Near death experience0:23:40 Kevin Meets other Caliphilaxis patients0:27:31 Facebook Group for MEN 10:29:50 Maintining positivity & hope0:38:48 Raising awareness0:46:53 Calciphylaxis study0:51:09 How Kevin's conditions have  chenged him0:57:22 Advice to others1:06:15 Why you should check to see if you still need all your meds1:08:22 Advamce,emts Kevin hopes to see in the medical field1:15:35 Biggest lessons Kevin has learned on his journey1:28:19 Most pressing needs of the rare disease community1:31:06  Conclusionnnel Rare Chef also as well as many cooking videos.Support the show