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Rare Disease Discussion with Romy Braunstein Journey

EPISODE · Apr 11, 2023 · 25 MIN

Rare Disease Discussion with Romy Braunstein Journey

from The Bridge: Your Health Your Voice · host The PATIENTS Program

Romy (Row-me) Braunstein's journey with Lambert-Eaton myasthenic syndrome (LEMS) disease is driving her to be a pioneer for patient advocacy. She wants to educate everyone about invisible symptoms in rare diseases. Romy's love for music inspired her to write a rap song about her journey. Check out her intriguing conversation with host Rodney Elliott. You can find Romy on Instagram, Facebook, and Twitter at ROMYONRARE and to learn more about rare diseases check out Rarediseases.org. Visit https://podcasters.spotify.com/pod/show/the-patients-program to stay updated on both past and upcoming episodes. Follow us Facebook https://www.facebook.com/PATIENTSProgram/ Twitter https://twitter.com/PatientsProgram YouTube https://www.youtube.com/playlist?list=PLf5TFMW2PWhKdIEaP2F9xN213vrkTrv9

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Rare Disease Discussion with Romy Braunstein Journey

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