Rare Disease Research - Insights from Charles River Labs with Roxana Redis and David Fischer

ONCE UPON A GENE - EPISODE 236 Rare Disease Research - Insights from Charles River Labs with Roxana Redis and David Fischer Charles River Labs is a rare disease research and drug development powerhouse and their work leads to life-changing treatments. I'm joined by Roxana Redis and David Fischer to talk about Charles River Labs’ support, rare disease research and how patient advocacy organizations can team up with them to make a big impact.  EPISODE HIGHLIGHTS What does Charles River Labs do? We are a global research organization that supports biotech companies and pharmaceutical companies to get drugs in front of the FDA and other regulators so they can initiate clinical studies.   What do patient advocacy groups need to have in place to contract with you? When they come to us, we will need at least the genetic testing done already, but from there we can guide them and provide supporting resources.  Are patient advocacy group roles in research and drug development evolving?  I've clearly seen the power of the network and families reaching out to other families. They find each other, refer each other to stakeholders that can help them along the way and genetic diagnosis is happening sooner.  LINKS AND RESOURCES MENTIONED Charles River Labs https://www.criver.com/ CONNECT WITH EFFIE PARKS Website https://effieparks.com/ Twitter https://twitter.com/OnceUponAGene Instagram https://www.instagram.com/onceuponagene.podcast/?hl=en Built Ford Tough Facebook Group https://www.facebook.com/groups/1877643259173346/