Rare Diseases, Missing Data, and the Limits of Modern Medicine episode artwork

EPISODE · Apr 29, 2026 · 26 MIN

Rare Diseases, Missing Data, and the Limits of Modern Medicine

from ByteSight · host PAICON

In this episode of ByteSight, Dr. Manasi A-Ratnaparkhe speaks with Faizan S. Mohammad, founder and CEO of Leg&airy, about the overlooked reality of rare diseases and what it will take to change it. Drawing on personal experience navigating the healthcare system for his son, Faizan challenges the very label "rare" when an estimated 300 million people globally live with these conditions, is the problem really scarcity, or is it a failure of translation, data, and economic incentive? Together, they explore why the technology exists but the pathway to treatment doesn't, why AI alone won't solve what incomplete data created, and what a future built on individual biochemical fingerprints could look like.

In this episode of ByteSight, Dr. Manasi A-Ratnaparkhe speaks with Faizan S. Mohammad, founder and CEO of Leg&airy, about the overlooked reality of rare diseases and what it will take to change it. Drawing on personal experience navigating the healthcare system for his son, Faizan challenges the very label "rare" when an estimated 300 million people globally live with these conditions, is the problem really scarcity, or is it a failure of translation, data, and economic incentive? Together, they explore why the technology exists but the pathway to treatment doesn't, why AI alone won't solve what incomplete data created, and what a future built on individual biochemical fingerprints could look like.

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Rare Diseases, Missing Data, and the Limits of Modern Medicine

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In this episode of ByteSight, Dr. Manasi A-Ratnaparkhe speaks with Faizan S. Mohammad, founder and CEO of Leg&airy, about the overlooked reality of rare diseases and what it will take to change it. Drawing on personal experience navigating the...

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