Rare Patient Voice, Connecting Patients with Research

from The Bridge: Your Health Your Voice · host The PATIENTS Program

Join us on The Bridge: Your Health, Your Voice as we welcome Pam Cusick, Senior Vice President of Rare Patient Voice. Discover how Rare Patient Voice empowers patients and caregivers, both for rare and non-rare diseases, byconnecting them with opportunities to share their insights with researchers. Pam highlights the importance of amplifying community voices to drive meaningful change.Visithttps://podcasters.spotify.com/pod/show/the-patients-program to stay updated on both past and upcoming episodes.To watch this episode and more, visit our YouTube channel ⁠https://www.youtube.com/playlist?list=PLf5TFMW2PWhKdIEaP2F9xN213vrkTrv9_⁠Subscribe to our YouTube Channel https://bit.ly/SubscribetoourYouTubeChannelLinks Website ⁠http://patients.umaryland.edu⁠Facebook ⁠https://www.facebook.com/PATIENTSProgram/⁠Twitter ⁠https://twitter.com/PatientsProgramInstagram https://www.instagram.com/thepatientsprogram/LinkedIn https://www.linkedin.com/company/the-patients-program

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This episode is 34 minutes long.

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This episode was published on January 28, 2025.

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