Real Lives: Eva’s Cystic Fibrosis Journey with Rachel Murray

Listen By:Season 7Season 6Season 5Season 4Season 3Season 2Season 1Podcast Categories:Fertility and pregnancyGuest interviewsInfectious diseaseRespiratory healthSkincareSkincare for babiesMy somewhat political views!Listen By:Season 7Season 6Season 5Season 4Season 3Season 2Season 1Podcast Categories:Fertility and pregnancyGuest interviewsInfectious diseaseRespiratory healthSkincareSkincare for babiesMy somewhat political views!Listen By:Season 7Season 6Season 5Season 4Season 3Season 2Season 1Season 7Season 6Season 5Season 4Season 3Season 2Season 1Podcast CategoriesGuest interviewsFertility and pregnancyInfectious diseaseRespiratory healthSkincareSkincare for babiesMy somewhat political views!John Test PageGuest interviewsFertility and pregnancyInfectious diseaseRespiratory healthSkincareSkincare for babiesMy somewhat political views!John Test PageA WonderCare PodcastReal Lives: Eva's Cystic Fibrosis Journey with Rachel MurrayPlay EpisodePause EpisodeMute/Unmute EpisodeRewind 10 Seconds1xFast Forward 30 seconds00:00/00:52:20SubscribeShareAmazonApple PodcastsGoogle PodcastsSpotifyRSS FeedShareLinkEmbedDownload file | Play in new window | Duration: 00:52:20 | Recorded on 21/09/2022Subscribe: Amazon | Apple Podcasts | Google Podcasts | Spotify Amazon Apple Podcasts Google Podcasts Spotify Real Lives: Eva's Cystic Fibrosis Journey with Rachel MurrayThis week I chat with Rachel Murray as we deep dive into Cystic Fibrosis.  We discuss the impact it has had on their daughter Eva.  We get to know Rachel and hear about her deep joy on the safe arrival of her gorgeous little girl Eva two years ago.Rachel and Jason found out that Eva has Cystic Fibrosis three weeks after her birth.  Rachel explains the process involved and how they coped with their daughter's diagnosis. We hear all about their journey and how they have coped since.  Most importantly we learn that there is hope and Eva's future looks brighter everyday.I discuss the genetic aspect to cystic fibrosis and the medications used in it's treatment.  Rachel explains how important it is that every child that is clinically eligible to benefit from new medications should have access to them.  We have come a long way in Ireland but there is more work to be done.  No family, child or adult living with Cystic Fibrosis should be excluded from a life of possibility.Cystic Fibrosis Ireland is an incredible resource for anyone affected by CF in Ireland.  It contains so much information and up to date advice and I urge every patient and healthcare provider to spend some time checking it out.I am so grateful for hearing all about Eva's Cystic Fibrosis journey with Rachel Murray.  Rachel is a passionate mum who see's the optimism  in medical advancement. Season 2 PartnershipI am so thrilled to be partnering with Salin plus for an entire Season packed with lots of respiratory health information! This 100% natural salt therapy device is suitable for both adults and children!  Tune in to learn more!Support this PodcastSimply following and reviewing this podcast can make a huge difference!  If you enjoy this episode ‘Real Lives: Eva's Cystic Fibrosis Journey with Rachel Murray' I would be so grateful if you could follow or subscribe to the show!I aim to support parents and appreciate every one of you who take the time from your day to learn something new along with me!  We have episodes where I explain medical conditions and offer lots of tips and advice from my perspective as a Pharmacist mum.  We also chat with experts about a whole range of medical and parenting challenges. Of course I can’t forget our little voices episodes where I chat with kids and hear things from their point of view!  I’m also extremely grateful to everyone who contributes to a real lives episode – I learn so much from these and am privileged to be able to share your story which will help people who find them in a similar situation in life.You can check out all of my previous episodes by clicking right here!Get Involved!Email [email protected] Sale!Salin Plus Air Purifier PLUS 1 Replacement Filter€157.95 €204.00Add to basketSale!Salin Plus Air Purifier PLUS 2 Replacement Filters€187.45 €250.00Add to basket Hosted on Acast. See acast.com/privacy for more information.