reALLERGIES Podcast Episode 2: What Patients Really Need in FPIES Care | Part 1

Welcome to Episode 2 of the reALLERGIES Podcast — a continued exploration of FPIES (Food Protein-Induced Enterocolitis Syndrome) through the perspectives of patients, families, and clinicians.In Part 1, this conversation shifts focus to a critical question: What do patients and families actually need—and are those needs being met?While clinical conversations often center around diagnosis and testing, this episode uncovers a different reality. Families are searching for guidance on managing reactions, understanding long-term outcomes, and navigating the emotional weight that comes with living with FPIES.Through real data, lived experiences, and clinical insight, this episode highlights the disconnect between what is discussed in medical settings and what patients are actively seeking—bringing attention to the psychosocial impact, anxiety, and uncertainty that shape everyday life.Because improving care starts with listening.Part 2 continues with deeper insights into research priorities, unmet needs, and the future of FPIES care.If you or someone you love is navigating FPIES, you are not alone.👍 Subscribe for Part 2💬 Share your experience (patient, parent, clinician) in the comments