reALLERGIES Podcast Premiere: FPIES Through Three Lenses (Parent, Patient, Clinician) | Part 1

Welcome to the premiere episode of reALLERGIES Podcast — a series exploring FPIES (Food Protein-Induced Enterocolitis Syndrome) through the combined perspectives of patient, parent, and clinician. In Part 1, Fallon Schultz (Founder & CEO of the International FPIES Association) is joined by Dr. Anya Nowak-Wegrzyn (Chief of Pediatric Allergy at NYU Langone) and Fallon’s son Landon, a teen living with FPIES, for an honest conversation about what this condition really looks like beyond the textbook.Together, they unpack why FPIES is often misdiagnosed or dismissed, how it was first recognized in the medical literature, and why families have historically felt like they were navigating the “dark ages” — with little awareness, few resources, and no clear roadmap. Fallon shares the moment that changed everything: being told “we don’t know what foods to feed him,” “we don’t have a treatment,” and “there isn’t an organization” — and the pledge that led to the creation of the International FPIES Association.You’ll also hear Landon describe what a reaction feels like in real life — the delay, the warning signs, the sudden escalation — and why validation and clinician support matter so deeply. Dr. Nowak-Wegrzyn explains why this is a “curveball” form of food allergy, why we still lack reliable diagnostic tests, and how patient voices have helped move the field forward (including milestones like the ICD-10 code and consensus guidelines).Part 2 continues the conversation with unmet needs, research gaps, and where solutions must go next.If you or someone you love is navigating FPIES, you are not alone.👍 Subscribe for Part 2💬 Share your experience (patient, parent, clinician) in the comments