reALLERGIES Podcast Premiere: “We Can Help You Live With It” — Managing FPIES Day to Day | Part 2

Welcome back to the premiere episode of reALLERGIES Podcast — a series exploring FPIES (Food Protein-Induced Enterocolitis Syndrome) through the combined perspectives of patient, parent, and clinician. In Part 2, Fallon Schultz (Founder & CEO of the International FPIES Association) is joined again by Dr. Anya Nowak-Wegrzyn (Chief of Pediatric Allergy at NYU Langone) and Fallon’s son Landon, a teen living with FPIES, as they dive into the realities families face after diagnosis: fear around food, the trauma of reactions, and the exhausting “waiting game” of oral food challenges.Dr. Nowak-Wegrzyn explains why one of the biggest unmet needs in FPIES is a reliable diagnostic test — because right now, the “gold standard” is still the oral food challenge, an all-day, high-stress process where families often go in with little certainty. Fallon and Landon share what this looks like in real life: the travel, the scheduling headaches, the anxiety, the toll on school and sports, the difficulty of IV access, and the emotional weight of not knowing what will happen next.But Part 2 also focuses on what’s possible. You’ll hear why most patients eventually outgrow triggers, what it feels like to finally “pass” a food after years of avoidance, and how families can build a healthier relationship with food even inside strict limitations. Fallon emphasizes the importance of clinical support that validates lived experience — and how the International FPIES Association helps bridge families to care, resources, and clinicians who truly understand this condition.This episode closes with takeaway messages for parents, patients, and clinicians: keep an open mind, listen closely, start small, communicate with compassion, and remember this is a syndrome you can learn to live with — and you don’t have to do it alone.📍 Next up: behind-the-scenes from AAAAI with the latest FPIES updates and advocacy work in action.📩 Topic requests: [email protected]