Red Stickers, Green Stickers: A Life with Galactosemia ft. Keith Topper

thegalactosemiapodcast.com - support the show; ad-free and early access episodesLinks & Resources Mentioned:Galactosemia Foundation: galactosemia.orgFoundation Newsletter Signup: galactosemia.org/newsletterGalactosemia Discussion Group Facebook: https://www.facebook.com/groups/183815918306215Food and Drug Law Journal Article: "Vegan Dairy: How FDA Can Avoid Crying Over Spilled [Cow-Less] Milk": https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4586018In this episode, we sit down with Keith Topper, a board member of the Galactosemia Foundation and someone who has lived with galactosemia for 27 years. As a recent law school graduate and professional at PwC, Keith offers unique insights into living with galactosemia and his advocacy work within the community.Key Topics Discussed: Personal experiences growing up with galactosemia Strategies for managing galactosemia in social situations The evolution of dairy-free food options over the past decades The importance of community involvement and advocacy Recent developments in galactosemia research and treatments The role of the Galactosemia Foundation Upcoming Foundation initiatives for 2025Guest Bio: Keith Topper is a 27-year-old professional from Long Island, now residing in Brooklyn. He holds degrees from Boston University and St. John's Law School, and currently works at PwC. Keith serves on the board of the Galactosemia Foundation, being the only board member who has galactosemia himself.00:00 Intro and Welcome 03:00 Describing Galactosemia to Others 07:00 Keith's Personal Journey 11:00 Growing Up with Galactosemia 20:00 Social and Educational Experiences 26:00 Advocacy and Foundation Work 29:00 The Galactosemia Conference Experience 36:00 Community Communication Updates 40:00 Vegan Dairy Legal Discussion 47:00 Treatment Developments and Future Hope 52:00 Personal Insights 1:01:00 Dr. Berry's Impact 1:05:00 Jill's Recap