Research and Language

Dr. Kathleen Knafl, a pioneering researcher and educator, shares her journey into family-centered research and what she’s learned from listening to families. Along with Hayley and Jaclyn, she talks about why the words we use like “burden” or “impact” can make a big difference, how families often see things more hopefully than doctors expect, why the parents voice matters in shaping care, and what it really means to support families.