Research and Orphan Diseases
from See the Invisible: Living with an Invisible or Rare Disease Hosted by Ronda F Jefferson
While I did not expect to do a topic related to Covid so quickly, while researching other topics, I did come across interesting articles regarding Orphan Diseases and how Covid has changed the outlook of research into these disorders. There was also an article about the cost of a rare disease in comparison to others. EveryLife Foundation for Rare Diseases Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, Study Finds (dravetsyndromenews.com) How Covid-19 is changing rare diseases research - MedCity News New Study Investigates the Number of Available Orphan Products, Generics and Biosimilars - NORD (National Organization for Rare Disorders) (rarediseases.org) Definition of Orphan disease (medicinenet.com) Orphan Drug Act of 1983 - Wikipedia
Embed this episode
No transcript yet.