Rethinking Everyday Life with Myasthenia Gravis

Myasthenia Gravis is a rare, chronic autoimmune disease that disrupts lives, yet it remains largely invisible in healthcare systems and policy discussions across Europe.  In this episode of Brain Talks, host Sam Pauly speaks with patient advocate Lutgarde Allard (European Myasthenia Gravis Association), and neurologist Lorenzo Maggi (Fondazione IRCCS Istituto Neurologico Carlo Besta di Milano) about the real burden of MG, the gaps in diagnosis and care, and what a more holistic, patient-centred future could look like. From lived experience to clinical expertise, this conversation makes the case for change, and explores how evidence-informed policy can transform care for people living with rare neuromuscular diseases in Europe.